I hope you don't mind me contacting you.
I've just made an appointment to see my GP in Nov' 2013. As I have severe dupuytren's contracture in both hands,and ledderhose disease (Plantar fibromatosis) on both feet consequently I'm certain this bend and tightening (noticed just 2 days ago) will be diagnosed as Peyronie's as they're all connected. I live in London so want to have my GP refer me by way of the NHS to either Mr David Ralph or Mr Suks Minhas. Do you have an opinion who might be best to see? Or another doctor altogether. I know I'm putting you on the spot but finding any UK information is proving difficult.
My initial concern is how best to stop it's advance or slow it.
I have looked on the Peyronies Society Forum where their names have been mentioned as was the link to your Blog.
Any thoughts would be greatly appreciated however I apologise in advance if this email is not appropriate.
Here's hoping that your appointment goes well. Men with dupuytren's and ledderhose often suffer from peyronie's disease too, a fact it appears you're aware of. At least you have immediately spotted this and decided to take action. It's likely that they will suggest a conservative approach at first, possibly pentoxifylline combined with a vacuum or traction device. Injection therapy in combination with traction is also an option. Conservative approaches are often taken an an attempt to avoid surgery later down the line. These are the tried and tested treatments in terms of attempting to limit the damage that peyronie's does.
You're right about the lack of information out there with regard to peyronie's disease. It's very unfortunate, considering how many men no doubt lose sleep over this health concern. There really aren't many 'go to' people in the UK or anywhere for peyronie's. Both of the urologists you mentioned are respected in the field. As is Tim Whittlestone I believe. David Ralph is a top class peyronie's disease surgeon, so if it came to that, you're in good hands there. As you can see from the Tim Whittlestone email the blog received, he appears to be very approachable and empathetic. Factors that of course cannot be underrated with a troubling condition such as this.
You may have already seen these. The videos are not peyronie's disease related, but do feature David Ralph and Suks Minhas. Maybe they will play into your decision making:
David Ralph: http://www.youtube.com/watch?feature=player_detailpage&v=uQ_lFVtkcMM#t=452 (7:38 in)
Suks Minhas: https://www.youtube.com/watch?feature=player_detailpage&v=ev-Sc13YCX4#t=1388s (23:14)
NHS waits can often be quite prolonged, weeks at best. If finances allow, it might be worth getting a consultation privately to speed things along.
I have my fingers crossed for you.